Hi,
I came across the below post on the Wolf Hirschhorn Syndrome Trust for the UK and Ireland forum.
http://www.whs4pminus.org.uk/phpBB3/viewtopic.php?f=10&t=79
I don't personally know the family concerned, but it sounds like they are having a really tough time with their son's almost continual seizures and are reaching out to the WHS community for help.
I think you need to sign up to post, so if you'd rather respond here I am happy to re-post any advice you may have from your own experiences.
Thanks,
Ross

