hi! i am also new to this site! I am seeking a wolfhirschhorn family with a young adult, my son dillon is 17yrs old and was diagnosed at birth with the wolfhirschhorn syndrome. please let me know if you know of any families, Thank you very much!
Joann (posted by Kevin)
Hi
I have been in touch with a woman who has a daughter 19 years old. She lives in Scotland and works with the 4p- website. She has been really good to talk to. I can put you in touch if you like.
hi my name is pam not new to group but new to this web site I have a 22 year old son with 4p if you have any questions I will help any way i can love to talk to someone else with a young adult with the same issues looking forward to hearing from you
My name is Tammy Walters and I have a 17yr old! His name is Devin and I would love to talk about him. Please feel free to ask any questions.
I dont know where you are, but we live in NYC and my son William is about to turn 21.
Hi, my daughter is 12 yrs old and was diagnosed at the age of 5yrs old.
My daughter is 32. Despite severe disabilities and complex health problems she is doing quite well. I never thought she might outlive me, so I have never planned for that. Now I am thinking about it. I have been told repeatedly she has a limited life span. I am grateful for every year she is with me.
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