Hi all P4- families..My son Josh is 22 years old, soon to graduation HS in may. I am deeply saddened and infuriated by the news story of the child being denied a transplant in Phili due to her disabilities. What is this world coming too? Shame, shame on them and power to everyone fighting against this crime...Josh was diagnosed at age 5, back when they were first starting to diagnose WHS, he has had slow development and seizures. Fortunately we have finally found a med for him that has worked great in controlling them. Josh thrives when around peers, is a very happy young man, and brings much joy to everyone he meets. If anyone has any questions feel free to contact me. bchamay@yahoo.com I don't remember when he started doing particular milestones but I can try if you ask..I also don't know alot of medical technical questions sorry. Blessings to all families and WHS angels...
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