Our little prodigy was born April 12, 2011. She was then, as now the world's most beautiful baby. At 2.5 months age began our doctor to suspect that something was wrong since the growth was very late and the development was slow, we decided to test out different things to figure this out, 1 week after we got the phone ... ... we had to go to the hospital for something was wrong. We got besjed on WHS ..... this was very rare to doctors had never been touched like. We went home with a slight swelling fears about what it really was ...... yes, we had 100 questions nobody could answer :-( Time has passed and we learn every day with Thea, she stands firm on eplepsimedisiner, feeding tube, heart failure.
I wonder a lot what follow up you have? How much training you with the kids?
Do you have some good advice What has helped you? how was the development at 8 months old age?
Thanks a lot for your reply :-)
Looking forward to getting to know you :-)
History

