Hello,
I am a new first-time father of a beautiful, premature little girl who has been diagnosed with WHS. She was born on August 10, 2011 at a gestational age of 35 weeks and a weight of 2lbs 15 oz. She was born with cleft lip and palate and is still in the NICU. I have been reading the stories and posts on this site since my wife and I received the diagnosis and this has been a great help.
Are there any questions I should be asking?
Are there any things I should be making sure the doctor and nurses are doing?
This is all very new, confusing and scary to me. Any guidance would be greatly appreciated.

